I recently took a SIBO Breath Test that showed high amounts of methane, leading to the SIBO diagnosis. This means that there are a bunch of bacteria that normally live in the large intestine but that have migrated to my small intestine where they are eating a bunch of my food before it gets absorbed by the small intestine (or sugars that my small intestine doesn't have the enzymes to break down on its own -- see below), and in the process they are giving off gases that make me feel bad.
The first step is to kill off all these bacteria that don't belong in the small intestine. I'm currently taking a medication called Rifaximin (Xifaxan) for 2 weeks, which has a success rate of about 70%. If that doesn't work, I'll have to try something stronger (and more toxic). It's not clear yet whether this is helping.
The next step is to try to prevent the bacteria overgrowth from happening again in the future. My doctor says that patients typically feel good for about 6 months after taking the Rifaximin, but if they don't change anything else they will typically have a relapse. Based on his experience helping many patients with symptoms similar to mine, he has observed that there is frequently a connection between SIBO and some kind of food intolerance, usually toward gluten (a protein) or a specific type of carbohydrate (e.g. lactose, fructose, starch).
To that end, my doctor currently has me on a very low-carb diet. The idea is to avoid any of the foods that I might be intolerant of until the bacteria have full evacuated the small intestine. Then I can start reintroducing carbs back into my diet one at a time and watching how my body reacts. For the next 3 months I'm not supposed to eat any fruit (berries, OJ, bananas, etc), dairy (milk, cheese, ice cream), grains (bread, rice, pasta, etc), sugary foods (candy, cookies), or starchy vegetables (potatoes). This means I can eat nothing but meat, eggs, vegetables (mostly green ones) and nuts. Every meal. For 3 months.
It's amazingly hard already and I've been doing it (or attempting to) for less than 2 weeks. I am a girl who loves fruit, pasta, and ice cream. Out of the major food categories, the ones I'm allowed to eat are actually the ones I would most readily give up. After drinking a fruit smoothie almost every morning for about 7 years, I'm trying to get used to eating bacon and eggs for breakfast. Lunch now consists of a green salad with some chicken. And dinner has become a depressing lump of cooked vegetables with some type of meat.
Of course, the holidays are not the best time to start a new and highly restrictive diet (I haven't been as strict on vacation as I was during the first week at home.) But even so, it's hard to decide which is harder to cope with -- the bloating and pain in my belly when I eat something it doesn't like, or the depressing realization that I'm sitting down to lunch with 4 other people whose are eating cheese and crackers with a fruit salad, and I can't eat a single thing that's on any of their plates. I start to feel sick to my stomach when I look at my own plate, and only manage to choke it down because I'm so hungry. I now drink at least 5 cups of tea per day because it's the only flavored drink that I'm allowed.
In the meantime I'm keeping a food diary to record everything I eat and how I feel afterward, and I plan to continue blogging about this in the hope that my experience will help somebody else who is also struggling with SIBO and trying to locate the real cause.
